“I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.” Psalms 139:14
Day +6 I still wasn’t feeling good ,still no appetite but, I felt much better than Sunday. I basically slept through the day, my dad and Clarine came by.
Day +7 I was getting fevers throughout the day, however my mouth started feeling a little better, I still had to numb my mouth to eat, but my appetite started to make it’s way back. My doctor said maybe in another two days I would see my WBC. So, that was something to look forward.
Day +8 My throat wasn’t sore anymore, however my teeth were still a little sensitive. I definitely was trying to get some sleep, I got about 5 hours of sleep throughout the night which was great for me.
Day +9 MY WBC finally made an appearance. YAY!!!! It moved from 0.1 to 0.2, doesn’t seem like much but that made the difference. My doctor explained to me that sometimes there is a gradual rise or a fast rise. Every day I since Day +1 I receive a Neupogen shot, a bone marrow stimulant, it gives your WBC a boost. I was so excited, however later that night I started getting cramps in my stomach and my lower back, I think didn’t much of it. So, I took an oxycodone for pain. That didn’t stop me from being happy that I finally had a WBC. Kelly by for our weekly catch up sessions, a lot of tea was given, lol. We talked to my nurse Michelle, a Spurs fan and love her she so nice and she was one person that told me you will have bad days but it will get better, God will get you through. I always appreciate our weekly visits Kelly, please know that.
Day +10 My WBC jumped from 0.2 to 0.9, ayeee I was getting fancy!! My teeth were hurting just a little, my throat wasn’t sore. And my doctor was so pleased with how I was doing but, I was still dealing with fevers and she thought they were engraftment fevers. Nonetheless, she told me I would be going home in a week and she gave me the best news ever, the triple-lumen catheter was coming out. They were going to access my mediport that I used for treatment. And my little sister, Nia came to visit me!! I was able to share the good news with her, but the coolest thing she was able to watch as they took that 5 inch tube out my neck. It’s always a pleasure when Nia comes, I knew her for a longggggg time. Her mother was my art teacher in elementary school, then they lived down the block from my family for years and our families became closer over the years. I wasn’t even mad she played at Christ the king, *cough* but was definitely happy for her that she got the chance to play four years at the University of Illinois. Our talks are always filled so much of everything, and I don’t take that big sister role for granted. I love you girl and proud of the woman you are continuing to growing into. Thank you for stepping in and helping my team, continue to be a beautiful soul and can’t wait until you are a PA! Then, Kara came through as well and I gave her the good news too. And, then Satch, (Yanie’s dad) but also one of my first basketball coaches came through to bust my chops as usual. Still talking and reminiscing about the championship game we lost at the Conrad McRae tournament, the only girl’s team in the first year of the tournament. Haha He’s still mad, right Satch, I love you and thanks for coming to check on your other daughter. I miss that Satch mobile though, it was comfortable! Thank you for coming to visit Nia, Kara, and Satch it was great to share some news with you. Later that night I felt a pain in the lower right side of abdomen, I assumed it maybe an ovarian cyst, so I was going to tell my doctor the next morning. Still battling high fevers throughout the day that it was becoming the normal.
Day +11 Next morning, I woke up and my mouth felt great no more pain. My doctor told me my WBC jumped from 0.9 to 2.7, a huge jump. She said I was doing great, but I told her about my pain and that I wanted it checked before I went home. So, she agreed and ordered an ultrasound, but I would get it done Monday. The rest of day was nice chill and I popped a oxy every time I needed one.
Day +12 Everything was feeling back to normal except my tongue, my body was still fatigued, but I’ve been showering and exercising, I was just still getting fevers. My doctor told me my WBC went from 2.7 to 6.6 , which was amazing!!!! However, she wanted to stop the neupogen shots because she wanted to get the fevers under control. To no avail I still had the fevers, but I was getting an ultrasound tomorrow so we would see the problem. Ozzie came up to visit me because he had to bring me a few days, it was good to see a family member, because everyone was sick, so they had to stay away.
Day +13 Dr. Bayer’s month of rounds in the hospital was over, so the third member of her team Dr. Donahue started rounds. She let me know instead of an ultrasound, I was going to get a CT scan with contrast because they wanted to see what was causing the fevers. So, I had drink this contrast liquid which is disgusting and because I had to get a CT scan I had to go to the first floor. WHOAAA first time out of isolation in 21 days. Transport came, I took the test I got some fresh air and after the test was done, I was sitting in the hallway waiting for transport and started to get cold. When, I got back in my room I had chills, but I was shaking uncontrollably. I had a 104.9 fever in one ear and an 107 temp in the other ear. I was wrapped in three blankets and heat packs under my arms. Took tylenol and it started to drop. The CT scan revealed that a small portion my colon was inflamed, that was causing the fevers. So, they changed my antibiotics. AND BOOM FEVERS STOPPED!! Thank God, the normal signs of an inflamed colon is diarrhea and I didn’t have that. It was me paying attention to my body, but making sure I didn’t go home because I was in a rush. I promise before I leave this place, I want to make sure I am okay because I do not want to have to be hospitalized again.
Day +14 Nothing eventful, just monitoring for 24 hours to make sure no fevers. So, I showered and exercised. I was waiting for a release day but after this calendar ends. My numbers fully recovered across the board my WBC, my hemoglobin, and platelets, shows that my bone marrow is putting in work.
Where would I be without with my family? Because there is an order to everything here it is.
Clarine- Thank you for calling me every morning, trying to fb video me, and encouraging me. You told me to stay focus on God’s plan, which I will always continue to do. You pushed to write this blog and convinced me that I had to share my testimony. So, thank you!! It is a blessing to have the best big sister, who has always supported me and you will give me advice even when, I do not want to hear it. You are my left-hand man, you go out your way to make sure that I don’t embarrass you, hahahhaa You are the greatest example of what an oldest child looks like. You are honest sometimes too much, stubborn, loving, strong-minded, secure, and feisty. I love you so much, thank you for being one of my best friends, confidants and sisters that I could have. I pray that God continues to bless you, and provide a doorway for bigger and better things for you and Ava.
Crystal- I still struggle sometimes because you’re no longer my roommate, but I am happy that you have your own beautiful family. You got a little better with finding your phone, lol Thank you for the drop by visitsha filled with shade, goodies, and for those homecooked meals that I longed for. You are my right-hand man ever since I could remember and I admire how genuine you are, caring, kind, fast talker, and fashionable. Thank you for being there for me, you are the best little sister anyone can have. And you are right this Test is only my Testimony, thank you for that reminder. I love you sister, thank you for being my best friend for 28 years I will never forget you literally. I pray that God continues to bless & protect you and your family, gives you the desires of your heart!
Ozzie- Thank you for checking in on me and being the science guy in family. You are my Leo brother on the opposite spectrum tho. It has been a joy having you back in New York. I love you, I remember how excited I was when you were born. Thank you for letting me use your car for all those doctor appointments I had to go in the last year. I know in the beginning it was hard for you, when I told you. Thanks for being an ear when I had moments, you always told me to stay strong because that was who I was. I love you very much, I am proud of the man I continue to see you grow into. You can be selfish at times (extreme leo spectrum)haha, but your humor, competitiveness, caring, and loving spirit continues to push me. I am blessed to have you as my brother.You reminded me THIS IS NOT RIDER! YOU WILL HAVE VICTORY! And you are right. I pray God continues to protect you and that he blesses you really soon *wink*!
Jaylen- My partner, the one who has been there from the very beginning. I know this has been very difficult for you, but you have been my confidant and rock. You will literally do anything for me and you have listened to me talk and vent. And all you did was sit and listen. You are sensitive, genuine, quiet, observant and talented. I am blessed that not only are you my partner but my twin. I am blessed that you are my brother, you literally keep our family and house together. I love you so much and you always remind me that I will defeat cancer. When, I made you my health proxy you accepted and listened to all my wishes. Day of admission they were suppose to collect my healthy proxy and two days ago when I looked in my bookbag, I saw it still my bag. God reminded me that I am your health proxy! You never needed one. Thank you Jaylen in advance for taking care of me for next few weeks and I pray that God protects you and gives you the strength to deal me. lol
Christian- You literally had a rough two years and I can’t say it enough of how proud I am. You didn’t let things bring you down but you experienced life and grew into the man we continue to see. You started this journey off with me, you provided laughter when one could feel down. You’ve provided some of the best wisdom during this journey, sometimes I forget that you’re the youngest. You are the funniest person I know, sarcastic, caring, honest, and intelligent. Thank you in advance for taking care of me and I can’t wait for your meals when you come home, I pray that God gives you the push to finish your last year of school strong and provide you with a job opportunity after.
Daddy- Where do I begin? Five years ago, you were dead for 20 minutes and I did the abbreviated CPR that I saw on TV, that contributed a little to you still being here, but GOD performed a miracle and you’re still here. I always joke that I saved your life and 5 years later we are in reverse roles. I know it has been extremely difficult for you after losing Mommy to cancer. You were at her side every step of the way, you never left her side, you took your vows very serious. After Mommy’s death, the word cancer equaled death to you, so I wanted to remove you from my situation in the beginning. But, as my battle became more complexed, the more you were involved. You have lost sleep worrying about me since I’ve been in this hospital. I am extremely appreciative that I have a father I can rely on, cares about me and loves me. You are doing the best that you can and I am grateful that you will do anything for anyone of your children. You come up here almost day that I tell you to stay home sometimes. And on the worst day of my life, I wanted to protect you because I did not want you to see me like that. I don’t think it would’ve been fair. You remind me to Keep my Head Up, Keep my Spirits High, Keep my Head Strong, Keep my Faith in God, and Keep my mind on Jesus! Thank you Daddy, for being my #1 cheerleader, supporter, and motivator. I love you very much and I am grateful to God that He saved your life so that you could be here to return the favor, lol. You are the best father we could have and Mommy would be very proud to know that you kept your word. Thank you in advance for taking care of me, I know it won’t be easy, but I want you know that I am thankful.
I am going home tomorrow, which is exciting. My body has to recover and I have still have no immune system. My immune system is worse than a baby. I have to be in semi-isolation my room, I am the only one that can use my bathroom, I have to eat home-cooked meals only for the next few months, everyone has to consistently wash their hands, I can only go out to the doctor in full mask and gloves, I can’t go near my three cats because they can get me extremely sick or kill me, my dog can not lick me, I can get the chicken pox again, and I have to get all the vaccinations I got when I was younger again a year from now when my system fully recovers. So, unfortunately I can not have visitors for the next few weeks, I have to protect myself , my body needs to build an immune system and I need to limit bacteria and infections.